Rare Disease Week is an annual event that brings together patients, advocates, healthcare professionals, researchers, and policymakers to raise awareness and advocate for the needs of individuals affected by rare diseases. It typically includes a series of activities, meetings, and educational sessions focused on rare diseases. During Rare Disease Week, participants have the opportunity to engage in advocacy efforts, share personal stories, discuss policy issues, and learn about the latest advancements in rare disease research and treatment. The event aims to amplify the voices of those affected by rare diseases and drive policy changes to improve